Listen to Your Mother Show videos are out! I ust got back from Tucker’s BigHuge Turning FIVE Birthday Extravaganza and Celebration, and discovered that special needs parenting is way better than sea monkeys. These videos are all over, and I’m swept up in the fun of reliving one of the best experiences in my life.You can see them all at this link (and seriously, they are awesome), see the DC show from start to finish here, or just see me talking about what it feels like to be a special needs mom below! I’m so honored to have been in this incredible show with such talented women. It was one of the very best days.
Here are the words, originally posted here, slightly modified for this show:
Having a child with special needs feels much the same as it does not to, and yet, well…different. Having a child with special needs feels like you won the lottery times infinity times a gajillion because, as every mom knows, having a baby introduces a level of love that we’d never have imagined.
Having a child with special needs also feels jealous, sad, and a little bit cheated.
It means that you have a baby – just like everybody else – and your moods and your boobs are elated and deflated. You’re overwhelmed and in awe. Just like every new mother. It also means that at some point, you realize that your child is different.
Having a child with special needs means that you’ll spend days, months, and (sometimes) years pretending. Pretending that everything’s fine. That he’s “normal.” You’ll talk about delays, and pretend to feel relieved when family and friends tell you not to worry about them. You’ll want so badly to believe that every baby develops at his own rate that you’ll try. You’ll try to believe. You may run with that for longer than makes sense because you don’t know how to make sense of the fact that you know. You know something’s wrong.
You’ll have friends with children who are mere weeks apart from yours when it comes to biological age. When they’re tiny, you won’t see a lot of differences. You’ll try to not focus on the small things and on the milestones. Your friends’ kids will get older, as will yours. And, all of a sudden, you’ll see more and more. You’ll notice differences. You’ll see your friends pretending not to see. Reassuring you, that your son “will catch up,” meaning well and trying to say the right thing. Again, you’ll pretend to believe them.
You may waver between devouring every developmental milestone checklist that you’re able to find and pounding the delete key on your laptop when one of the new baby emails enters your inbox with the subject line of “He’s 18 months and is saying these words now!”
At some point, the lack of language brings you to professional evaluations. You’ll receive devastating news from a doctor, from Early Intervention, from a therapist, from a school. They’ll confirm that you were right. That your child is not typical.
And you will only refrain from falling to your knees because your son is watching you.
You’ll realize that not only have you been reading the wrong parenting books, but that you’re in the wrong library.
You’ll mourn for the baby you thought you’d have. You’ll cry for the injustice of being dealt an unfair hand.
You’ll have faith.
You have faith that he will catch up. Or at least be okay. You have to have faith because the alternative isn’t an alternative.
Finally, maybe, you’ll understand that your baby is delayed. Is not “typical.” And you’ll do what you have to do. You’ll seek therapy. All of it. You’ll pay much too much for a few hours of social interaction therapy in a single week, knowing that it makes a difference.
You’ll have met and fallen in love with your friends’ children. Your nieces and nephews. You’ll have spent years marveling at the precociousness and hilarity of young children and their incessant chatter.
You’ll think about the child you might have had. You’ll grieve for him, and feel awful for it.
At some point, you may shed bitter-hot tears over the fact that you miss this little person who was almost-fully formed, if only in your dreams.
One day, you’ll realize that you’re rarely grieving for that might-have-been son any longer. You’ll forgive yourself and know that it’s okay to grieve the child that you’d imagined raising. That little boy that you can almost-maybe-see, sometimes.
You’ll reach a point where you want to come out to friends and family because you’re lonely. And so you do. They say they’re okay with it, but they don’t really get it. A part of you doesn’t want them to get it because you don’t want their pity. More than anything else, you don’t want pity. But you also understand that it’s hard for them not to offer a bit of pity when it’s a situation that actually warrants some.
In searching for answers, you look at your cards and realize that others are dealt a much more difficult hand. That some hands involve birthing babies fighting for their lives, who die, who were “incompatible with life,” and you feel blessed.
Because you are.
You are blessed. Every mother is. Every parent is.
On the flip side, one day, you’ll get on Facebook and see somebody complain that her two-year-old called her fat. You’ll feel jealous as hell that her two-year old knows what fat is, because your four year old thinks you’re perfect. Fat and all.
And then, you’ll realize that maybe you’re the lucky one. That having a two-year old call you fat makes for some funny blog material, but that having a four-year-old who still thinks you’re the best person in the history of time is pretty perfect.
You’ll see that although his language sucks compared to his peers, when you say “You’re my favorite person in the whole wide world!” and he pushes your face away with a silly grin, that in his heart, he’s saying, “I know, Mommy. And you are mine.”
You’ll see love that’s bigger than you are.
Life will be different than you imagined.
But ya know what? It’s going to be just fine.