Finding Ninee » Sharing our parenting and special needs stories with heart and humor.

Blessed

I kept Tucker home from school again today.  Not only did he puke in my hands last night, but he was massively sleeping when it was time to get up.  I didn’t have the heart to wake him.  Upon waking, he seemed fine, but I didn’t want to risk going to our usual haunts as he’s still super-tired, clingy, and a little feverish.  So, this morning, as I was playing trucks with him, and feeling bored, I checked Facebook on my phone. I came across a post that not only changed my day, but, hopefully, my outlook on life.

Here I was, having the luxury of feeling bored, able to play trucks and airplanes with my son.  And here this other mother was, mourning the loss of her son, Ty Louis Campbell.  I cannot begin to understand the depths of despair and depression that a mother goes through when losing her child.  Honestly, I do not believe that I would be able to go on.  With no other children to comfort, with no other futures to nurture, I do not believe that I would not completely implode if Tucker were no longer here.

I had never read Cindy’s blog before today.  But after reading that she lost her precious son to cancer, I stopped messing around with my phone and took Tucker outside and inside and outside again.  For the rest of the day.  I blew bubbles, drove trucks and flew tiny airplanes.  Over and over and over again.  And it was fun.  I didn’t even mind when he refused to lay down for a desperately needed nap.

There have been days that I have grieved over Tucker’s lack of language.  Over his “speech and language delay.”  I would be lying if I said that it doesn’t make me really, really sad that Tucker (sometimes) struggles so much to repeat what I say when he’s asking for something.  When he can perfectly imitate the “ch” for “chips” but then says “pee” for the “ips” part of it.  It breaks my heart.  And scares the hell out of me, wondering whether he will ever be able to say “chips” normally.  When he can perfectly say “ice” and “cweam” but not “icecweam.”  I would also be lying if I said that seeing other three-year olds chattering away endlessly doesn’t fill me with sorrow, because it does.  It makes me jealous.  But reading Ty Louis Campbell’s mother’s blog, and knowing that she had to give her lifeless boy a bath tonight after marveling that his tiny body was still warm –  makes me feel so lucky.  So blessed.  And it makes me hate cancer, especially in children.  Feeling these especially raw feelings for a family I’ve never met made me a better mom today.  It made me remind Robert that just because Tucker is feeling ill, zoned out to videos on the couch, that it’s still NOT okay to just mess around with our iPhone apps.  That we are SO LUCKY to have Tucker in our lives.  Speech, smeech.  He is HERE.  And he is PERFECT.  Just the way he is.

Thoughts and prayers to Ty Campbell’s family tonight, and for all of their heartbreaking nights to come.  I wish them peace.  And, I hope nobody takes this the wrong way, as I know that it in no way lessens their horrible grief, but I am so glad for them that they have a healthy boy to raise, and to remember Ty with.  I know that sounds weird, but as a mother to my only son, I truly believe that I would not be capable of “moving on” without Tucker.  So I’m happy that they will, again, at least hear the gleeful laugh of a growing boy echo their walls.  Disease should just leave kids alone.  Focus on the rest of us* who deserve it for eating processed, growth hormone-injected foods, smoking, not exercising, and generally just not appreciating the gift that life is.  Because, obviously, even when it doesn’t feel like it, life’s a gift.  Just ask the mother of a little boy who will never go through puberty, learn to drive, get married or have a child of his own.

 *But, please, not me yet…I very badly would like the gift of watching Tucker become the man that he will one day.


  • Susan - What superb points you make about feeling lucky about your son and also about how you’re happy that Ty Campbell’s family has another son. Not that that takes away from grief they’re feeling but it does help me too to know another boy will be laughing in their home. You are brave to say that and I am happy they have another child too. As a mother with only one daughter, I really feel what you are saying. We probably won’t have any more kids and the bleakness in thinking about we could lose her to cancer or anything else is overwhelming. Thank you for your blog, and for taking the time to write about these sometimes important sometimes funny things in your family life. You are my favorite blogger now. Thankyou. Are you thinking of having more kids? Or maybe you are posting about that later so if you don’t want to answer that’s ok. October 19, 2012 – 2:50 pmReplyCancel

    • admin - Hi Susan, thank you so much for visiting Finding Ninee. I really appreciate you taking the time to comment. To answer your question, yes, the sibling issue for Tucker is on the list for post ideas. To be honest, I think we’ve missed the boat on giving him a little brother or sister biologically at this point. I’d love to be able to just clone him! Thanks again for visiting and commenting.October 19, 2012 – 6:33 pmReplyCancel

      • Sara - Y’know, there was a time when I totally would have carried your baby for you. I used to think I’d make a great pregnant lady, but I didn’t want to keep the result. ….but now, alas, I fear that option has passed us by. If I ever steal a baby though, you are first in line.

        Great post, btw. Heartbreaking story.October 19, 2012 – 9:53 pmReplyCancel

        • admin - Awww Sara!!! You can still carry one for me 😉
          thanks for an awesome comment and thanks for visiting the site so much 🙂 YOU ROCKOctober 19, 2012 – 11:20 pmReplyCancel

  • Em - omg, I found your story by a frien on Facebook and reading your post made me cry lots. you’re right that having your son here even with speech, smeech is so lucky. I am pregnant with my first darling and already know what almost being a mum has done to my worry. this is very insightful.October 19, 2012 – 9:15 pmReplyCancel

    • admin - Thank you so much Em! I wish you the very best of luck with your first amazing life. You will never believe how much you can love until you hold your new one in your arms. And don’t worry – usually, everything is just perfect. One way or another. Thanks again for finding Finding Ninee!October 19, 2012 – 11:43 pmReplyCancel

  • Joy - Ty’s story is still breaking my heart, too. I have been a long-time reader to Cindy’s blog and the worst was to experience the hopes they had for a cure and all those exhausting therapies that Ty endured. And in the end, he was taken from them nevertheless. I am still so, so sad about that and I try to spread awareness for childhood cancer whenever I can.
    And I also get your thoughts on the second child. My viewpoint is exactly the same, Sunny being my only child. I don’t think I would survive that.December 31, 2012 – 4:20 amReplyCancel

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