Finding Ninee » Sharing our parenting and special needs stories with heart and humor.

Our Land – A place where we belong

Today’s Our Land Series piece was written by one of my best blog friends – one that I hope that I’ll have a chance to meet in real life, and soon.  Stephanie, who authors Mommy, For Real, is an amazing writer and gives the rest of us a voice about what parenting is really like when we need it.  Stephanie is funny, introspective, brilliant and knows how to be “for real.”  Always.

Plus?  She’s a talented music therapist who has created a beautiful place where every child belongs.  One that’s helping the parents and children in her community get a little closer to making Our Land – the land where empathy and wonder rule – a reality.

I know.  Could you love her even more than I do?  No, no, you could not.  My biggest regret today is that I live too far away from her to enroll Tucker in her class.  Without further ado, I present the second piece in The Our Land Series:

A place where we belong 

I sat on the rug, surrounded by six children and their parents, strumming my guitar and singing hello to each one by name. After each child’s verse, we listen while they tell us about their day. They share things like,

“I went to school.”

“I had OT with Miss Anna.”

“I went to Papa’s house.” (Child’s mother patiently reminds her that she didn’t see Papa today, but she did go to the dentist!)

A grandmother shares the details of her nonverbal granddaughter’s day, holding her in her lap while she wiggles in excitement, waiting for the music to start again.

We are called Music Therapy Friends, and each week we meet for our own special music class, where we sing songs, play instruments, and move to the music. As a music therapist for the past 12 years, I created this class specifically to focus on the needs and goals of the kids who attend. We incorporate speech and language, social interaction, following directions, fine and gross motor skills, and sensory integration into each class.   The children who attend this group are extremely diverse; one child has autism, two girls have Down Syndrome, one child has Asperger’s, one extremely verbal little boy has sensory integration dysfunction, and one child is nonverbal, walks with assistance, and is diagnosed with a rare seizure disorder.

Several of the children are aware of their diagnosis (one day my chatty little guy Eric announced, “I hate getting my toenails clipped- I’m a sensory kid!) but the fact that they are each “different” from the others in the group escapes them. It simply does not matter.

One of the girls with Down Syndrome, eight year old Kayla, has become very attached to her friend Emily, even though Emily cannot speak to her. One day Emily wasn’t in class, and Kayla was terribly bothered by her absence, mentioning her frequently and even insisting we sing goodbye to Emily. While we sing, Kayla often snuggles right up next to Emily, stroking her face and helping her play the instruments.

The class all knows that the drum is too loud for Kayla, and Eric, who has assumed the role of class leader, makes sure that the other kids respect each other’s preferences. Eric and his pal Aidan, who has Asperger’s, frequently remind their friends that Alexis doesn’t like sitting too close to the drum. They have learned to read each other’s nonverbal cues and respond with kindness and respect. More than that, they have become protective of one another, and are truly invested in their new friends. Emily, who does not have the words to tell us when she is enjoying a song, lets us know by smiling and laughing happily- the kids immediately notice and are excited when Emily’s face lights up during her favorite songs.

Each class is filled with opportunities for social interaction; they pass instruments to one another during turn-taking songs, they dance together during movement to music, and they sit close together to play the gathering drum as a group.

It takes practice for them to pay attention to the others- each week we have several opportunities for the kids to be “leaders” during a song. Everyone watches Aidan while he plays the rhythm sticks, and then we change our focus to Sarah while she carefully chooses a different way to play the sticks. They are learning to follow each other’s cues, but one thing they haven’t had to learn is how to care for each other. It is innate.

When I named the group Music Therapy Friends, it was a somewhat arbitrary label. I had no idea that the kids who attend this class each week would become true friends. Their closeness with me, their teacher, has been equally moving. As we sang goodbye last week, Kayla leaned over and kissed my cheek. “Best friends,” she told me. I squeezed her hand and thanked her for being my special, sweet friend.

Over the past few months, I have noticed organic changes happening in our group- changes that the kids have initiated. They bring their own ideas and vision, and our classes have seamlessly evolved as the kids have created new challenges that they were ready for as a group. The kids are proud of their ideas, and I patiently try to accommodate as many requests as possible; they have all developed favorite songs and instruments, and they take ownership for the class experience. This is their group, and they are proud of it.

Music Therapy Friends is a sanctuary where each week, for one hour, the kids truly belong. I belong there, too; I am not part of their families- I do not struggle with their discomfort with nail-clipping, I do not carry them up the stairs to bed each night, I do not struggle to make sure my voice is heard during an IEP meeting- but in our music group, I am part of their family.

It is one of the most unique, inclusive, and sacred places I have ever been.  It is a place where we all belong.

Stephanie Sprenger is a music therapist, early childhood music teacher, writer, blogger, and most importantly the mother of two little girls. In her free time you can find her singing at the piano while being climbed on by a toddler, or frantically typing at her computer, drinking wine or coffee depending on the time of day.

 

 

See?  Told you she was awesome.  I just read this again.  Do I have amazing friends or what?

OH also?  Remember how once upon a time -like 2 weeks ago- I shamelessly asked that you vote for me all the time in TMB?  Yeah, me, too.  I stopped.  But I’m slipping.  All it takes is a click.  Every stinking day.  Please?  It’s that handy little brown button.  I’m not going to paste it here, too, although I know more of you would vote if I did.  It’s called training.  And begging.  And I am pathetic.

Also?  Do you want to contribute to the Our Land Series? It began because of this -and all that is required is that you want to make the world more full of empathy and wonder.  To submit a contribution, just use the contact form and email me.


  • Courtney - Aw! That is so important to create a place where kids can just be. What a lovely idea and post. I wish we had something like that around here.May 1, 2013 – 8:36 amReplyCancel

  • Stephanie @ Mommy, for real. - Thanks for making me sound so awesome, friend. I am so honored to be a part of this, and your kind introduction made my day. For real. xoxoMay 1, 2013 – 9:38 amReplyCancel

  • Kenya G. Johnson - Oh I have goosebumps from head to toe. That was beautiful. The respect that they have for one another and have learned each others preferences is just beautiful. Thank you for the inside look Stephanie and thank you Kristi for sharing this on your blog.May 1, 2013 – 9:40 amReplyCancel

  • Kristi - Courtney,
    I just asked one of the moms at Tucker’s school whether she new of a good music therapist because of THIS POST from Stephanie. She’s going to email me one. It won’t be Stephanie, but it’ll be Stephanie-inspired.May 1, 2013 – 10:26 amReplyCancel

  • Kristi - Stephanie,
    You are awesome. For real. Thank YOU for writing this and letting me use it here.May 1, 2013 – 10:26 amReplyCancel

  • Kristi - Kenya,
    Agree agree agree! I love that the kids are learning to respect one another and look out for each other. Awesome stuff.May 1, 2013 – 10:27 amReplyCancel

  • Dawn Beronilla - Stephanie, thank you for being exactly what that group of kidlets need. You are a rockstar!
    Kristi, thanks for posting blog posts that make me laugh or cry or hurt or feel joy… I know every time I’m here that it’s going to be good. 🙂May 1, 2013 – 10:51 amReplyCancel

  • Kristi - Dawn,
    I <3 you.May 1, 2013 – 10:55 amReplyCancel

  • Kerri - I want a music class for Boo! Oh my this would be so great for her. Stephanie should become the traveling Music class 🙂May 1, 2013 – 11:12 amReplyCancel

  • Kristi - Kerri,
    I know right!? I want one for Tucker, too.May 1, 2013 – 11:19 amReplyCancel

  • Maggie Amada - Stephanie, It’s awesome that you can make a difference in kid’s lives and create a place for friendships to grow. You’re an inspiration.May 1, 2013 – 11:23 amReplyCancel

  • Dana - Wow. Stephanie – your story will leave me smiling the rest of the day. And thank you Kristi for creating this series – I couldn’t wait to come over and read when I saw you had posted! I hope you can find a music group for Tucker that’s even half as wonderful as Music Therapy Friends!May 1, 2013 – 11:37 amReplyCancel

  • Stephanie @ Mommy, for real. - Kenya- thank you so much, and thanks for sharing! I love Kristi, and I think this series is amazing!May 1, 2013 – 11:57 amReplyCancel

  • Stephanie @ Mommy, for real. - Courtney, Kerri, Maggie, Dawn, and Dana- thanks so much for reading, and for your kind, supportive words! I feel very grateful to have a job that I love, and to get to work with such amazing kids and families.

    I highly recommend music therapy for addressing a variety of developmental goals with kids! The AMTA website is http://www.musictherapy.org.

    OK, I better go check and make sure that website is the right one! 😉May 1, 2013 – 11:59 amReplyCancel

  • Melissa - Of course you are right – she is awesome. But we knew that. She is also sensitive, intuitive and soothing. I could totally hear her voice in my head (well, what I imagine it sounds like) as I read this and I felt really peaceful after. Why can’t all kids be in this class, so they all feel like they belong? And maybe some adults, too. 🙂
    Thanks, Kristi for coming up with this wonderful series.May 1, 2013 – 1:05 pmReplyCancel

  • K - OMG! Love, love, love this! Made my day; thank you both for sharing. 🙂May 1, 2013 – 1:52 pmReplyCancel

  • Janine Huldie - Having taught students with a range of learning disabilities in the middle school level, your music class sounds ideal for all the kids you are teaching and reaching out to. And you are very much making a wonderful impact on these kids and helping create memories I am sure they will not quickly forget. Seriously Stephanie, you are truly an inspiration and even though my girls for the most part are not learning disabled and we don’t live anywhere near each other, I am with Kristi on wishing that we did, so I could have you as my kids’ music teacher.May 1, 2013 – 4:15 pmReplyCancel

  • TheSocialButterflyMom - Such a tender post 🙂 My son’s music class is our favorite activity, and we’ve been doing it for 20 months (his life, basically). Sometimes, my husband will even request that I skip Friday class so he can do a makeup on Saturday. It’s that special.May 1, 2013 – 4:24 pmReplyCancel

  • Stephanie @ Mommy, for real. - Melissa! I am speechless! That beautiful comment made my day!

    And Janine, thanks for those kind words- I sometimes forget that you and I share the teacher connection.

    K- thanks for reading and commenting- I’m so glad you liked it!

    TheSocial Butterly Mom- Thank you for your comment, and I’m so glad that you have such a fantastic music class for your son. It *should* be something that the parents look forward to as well!May 1, 2013 – 4:30 pmReplyCancel

  • Kristi - You guys. All so awesome. Oh and Stephanie, in case you didn’t realize it, “K” is Kerry – the one who authored last week’s Our Land piece. Thought you might want to know. 😀May 1, 2013 – 8:17 pmReplyCancel

  • Stephanie @ Mommy, for real. - Kristi- I *totally* wanted to know that! Thanks for filling me in. OK, K, now that I know who you are- Wow. You are beyond incredible. Loved your piece.May 1, 2013 – 10:31 pmReplyCancel

  • Katia - I’ve been staring at my computer screen for the last ten minutes trying to figure out how to comment. I just wish that everyone was like you Stephanie and Kristi and like the kids in that class, accepting, protecting and embracing each other.

    We have a visitor from overseas staying with us for 3 days. My husband’s half brother. 3 Year Old is in love with him. He tries to impress him and laughs at anything he says. Tonight he didn’t want to go to sleep and in an attempt to continue the interaction a while longer, he was telling his young uncle a story about a vampire. Uncle and I were trying to get him to go to bed and at one point we jokingly said that uncle got too frightened. 3 Year Old laughed, then the question mark in his eyes turned into fear and his lip trembled. I realized he thought his words scared his favourite person in the world, he felt embarrassed, then maybe humiliated when I told him we were joking. I lifted him up as he was breathing rapidly into my shoulder clinging on to me and I feel like crying knowing that I’m responsible for making him feel so bad even if for a brief moment.I felt like my heart was smashed, seeing him feel so bad. Feel so bad about himself.

    I can only imagine what the parents of the kids in Stephanie’s class feel like. What you feel like, Kristi, when these kids are misunderstood, maybe even judged, maybe forced to feel bad about themselves and I wish I could take that away.

    Thanks for the post and thanks for the series.May 1, 2013 – 10:50 pmReplyCancel

  • Kristi - Katia,
    I wish everybody was accepting, protecting and embracing each other too. Well said (that 10 minutes paid off because this comment rocks – I’m getting a little teary, actually). Oh and sweet mama, please don’t beat yourself up about accidentally scaring your little boy! I know what you mean about feeling horrible about having a less-than perfect moment with our kids because I have had them, and will have more, too. Every mother does. I’m sure that the moments you are awesome far outweigh a misunderstood joke about uncle being scared. Hugs. And thank you for the comment!May 2, 2013 – 7:25 pmReplyCancel

  • Katia - You’re wonderful, thank you so much!May 2, 2013 – 8:50 pmReplyCancel

  • Stephanie @ Mommy, for real. - Oh, Katia, your comment gave me chills and made me teary- I can SO relate! We really do have so much in common…May 5, 2013 – 10:19 amReplyCancel

  • The Sadder But Wiser Girl - Stephanie-you already know that I love you, and am totally jealous of what you do. I really wish I had followed that path like I intended-I even looked into the program at Waverly. Interestingly enough, the music teacher at the Catholic school before me was also a certified music therapist who had graduated from that very program!

    When I was teaching in the public schools, one of the two schools I was at had a program for children with severe and profound disabilities. I had them for music twice a week. They were my absolute favorites. I looked forward to music class with them each week. One girl was blind, deaf, and very low functioning-but the delight that she expressed when feeling the vibrations on a drum was something that made me happy beyond belief.

    I’m so happy you do what you do and are successful at it. 😀May 8, 2013 – 11:55 amReplyCancel

  • Joy - Great post! I am such a fan of music therapy, too!May 14, 2013 – 11:45 amReplyCancel

    • Kristi - Joy,
      I need to sign Tucker up for it – I know he would love it!May 14, 2013 – 7:16 pmReplyCancel

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